Offline Xpression

Undiagnosed for 8 Years: The Truth About Genetic Testing | Michelle Choairy

Jeff Hinderscheid Season 2 Episode 13

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Michelle Choairy joins Offline Xpression to discuss the reality of parenting a child with TBR1, an ultra-rare genetic disorder that went undiagnosed for eight years. Michelle shares strategies for navigating the "broken" special education system and stopping parents from getting "pushed around" by school districts and insurance companies. From fighting for IEPs to the decision to ban YouTube due to behavioral aggression, this episode is a practical guide to becoming the advocate your child needs.

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